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Eighth

Resources

Provided below are resources for health professionals and people living with cystic fibrosis. If you would like more information, please contact your state CF organisation and speak to the services team or social workers.

GENERAL

A Guide for Health Professionals

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions.

Travel checklist

CFStrong medication checklist! So you don’t forget any necessary meds on your next trip!

SOCIAL WORK & PSYCHOLOGY

The Australian Clinical Practice Guidelines 2017 

Guidelines for Social Work in Cystic Fibrosis. These guidelines provide  recommendations for social work practice at development stages across the lifespan. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre.

What about me?

A thesis written by Dr. Judith Glazner, who has worked extensively with the CF community in Melbourne, Australia. Dr. Glazner provides an insightful observation in her 2017 thesis study about the sibling experience and CF.

Getting the language right

A health practitioners guide to writing reports, letters, forms, and assessments for the NDIS

Depression, Anxiety and Cystic Fibrosis

People with cystic fibrosis and parents who take care of children with CF are two to three times more likely to experience depression, anxiety, or both, compared to people in the general population. These guidelines were published to help CF care teams provide effective care for people with CF and their families with depression, anxiety, or both.

Carer Help

The Carer Help website provides practical information, advice, and resources for individuals and their carers when death is a possibility. It is a comprehensive website to assist individuals with what to expect and how to empower themselves and their loved ones at different stages of this time

FACTSHEETS

Factsheet for educators 

This factsheet has been produced for Australian education providers, including tertiary and TAFE organisations, lecturers, tutors and other educators, who have a student with cystic fibrosis (CF).  It aims to inform educators about CF, and provide ways for individuals and organisations to support students to achieve their education goals.

Factsheet for employers 

This factsheet has been produced for Australian employers and organisations who have an employee with cystic fibrosis (CF).  It’s aim is to educate employers about CF and provide ways for employers and organisations to support employees to reach their full potential

Time Management 

This factsheet provides time management tips for people living with cystic fibrosis.

Why you need a GP

Most adults with CF are closely involved with their clinic team, however, it is also important to have a local GP. The team at The Alfred in Melbourne highlights why.

PHYSIOTHERAPY

Beam Feel Good

Beam Cystic Fibrosis is a resource to help people with CF feel good through movement, education, and wellbeing support. All the activities and information are targeted at people living with cystic fibrosis.

CF Physio 

CFPhysio.com aims to provide continued professional development for physiotherapists working in Cystic Fibrosis care. This resource has been produced by a group of physiotherapists who specialise in CF across Australia with the aim of empowering individuals with CF to become involved and proactive in their healthcare journey.

TSANZ Physio Guidelines 2016

Clinical Practice Guideline for Physiotherapy for Cystic Fibrosis in Australia and New Zealand

Physiotherapy for Cystic Fibrosis in Australia A Consensus Statement

The statement provides recommendations for the key areas of physiotherapy management for patients with CF, including airway clearance therapy, inhalation therapy, exercise, musculoskeletal management, care of the complex patient, management of the newly diagnosed patient, transition from paediatric to adult care, end-of-life care, and infection control.