What is CFStrong? 

CFStrong is a website designed and built specifically for adults living with cystic fibrosis (CF). As it currently stands, due to the increasing age of the CF population, there is limited centralised access to specific CF information, resources, and insight into the lives of others living with CF in Australia. CFStrong aims to fill this gap.  It is an online resource full of stories and information, and advice, and covers topics such as medical questions, employment, relationships, and much more.

As a result of huge advancements in the understanding and treatment of CF over the past 30 years, the quality of life and life expectancy for those living with CF has dramatically improved. There is still no cure for CF, but thanks to these leaps and bounds we have reached a new paradigm. CF is no longer a childhood disease, and people with CF are beginning to live longer, healthier, and more fulfilled lives.

Our challenge is to meet the changing needs of our growing adult CF community. CFStrong will help meet part of that need and complement our growing suite of services and support available for adults with CF.

Get involved!

appreciate positives

To help increase knowledge and information sharing for the broader adult CF community, we would love to hear from adults who have or are impacted by CF, including friends, family, colleagues, health professionals and mentors, to name a few. Our goal is to help reduce isolation within the community and bring transparency to the world of CF. If you would like to share your story contact us at admin@cfcc.org.au

Thank you

We’d like to say a big thank you to our Reference Group, who provided invaluable insight and direction with the project. The Reference Group was comprised of 7 Australian adults living with CF, who come from various parts of the country, bringing different skillsets and mindsets. They have helped steer the project ensuring the information is relevant, relatable and useful.

CFStrong has been funded by the Australian Government and was made possible by an Information Linkages and Capacity Building (ILC) grant.