Stories and information for young people living with CF on moving to adult care, fertility, CFRD, puberty, plus answers to some sticky questions.
By Mia Hi, my name is Mia, and I was diagnosed with cystic fibrosis (CF) when I was 6 weeks…
Yvonne AollJanuary 16, 2024
By Tayla Purves I have always never thought about having CF – I kind of told my body to shut…
Yvonne AollJanuary 12, 2024
My name is Coby, and this is my CF story. I was hospitalised in November 2017 with pneumonia and various…
Yvonne AollNovember 29, 2023
It’s a bit daunting to think of the future when you have cystic fibrosis. If you find yourself freaking out,…
Yvonne AollNovember 28, 2023
By Tayla Purves One of my biggest fears before starting Trikafta was that coughing all the old, sticky, smelly, gross…
Yvonne AollNovember 21, 2023
Sam learnt that transitioning to adult care doesn't mean going it alone. It just took him a while to figure…
Sarah MorrisseyJanuary 18, 2023
Seventeen year old Kiah lives in WA with her Mum, Dad and younger brother who also has CF. Kiah is…
Sarah MorrisseyDecember 14, 2022
Depending on your age, starting a family might seem like a far off thing, for others it may be something…
Sarah MorrisseyDecember 6, 2022
Many people with CF experience urinary incontinence, or "leaking" urine when they don’t want to, particularly when they cough or…
Sarah MorrisseyNovember 30, 2022
These days women with CF have higher fertility rates than previous generations. Most women with CF can become pregnant if…
Sarah MorrisseyNovember 30, 2022
In the past, the onset of puberty in young people with CF was delayed by up to two years. Now,…
Sarah MorrisseyNovember 30, 2022
STOP, and read this slightly awkward article. It’s filled with information you need to know. Depending on your current age,…
Sarah MorrisseyNovember 30, 2022
We set out on a mission to ask CF Clinical Nurse Consultants (CNCs) from adult hospitals 3 things they want…
Sarah MorrisseyNovember 29, 2022
You probably have a ton of questions about moving to adult care and what it means for you. The…
Sarah MorrisseyNovember 18, 2022
Soon to turn 18? Wondering what that means for your privacy rights and entitlements? Well, read on to find out...…
Sarah MorrisseyNovember 18, 2022
When you were younger, your parents made all the decisions for you. Whether it was about what clothes to wear…
Sarah MorrisseyNovember 16, 2022
The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs of Cystic Fibrosis Community Care. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health.
