Seventeen year old Kiah lives in WA with her Mum, Dad and younger brother who also has CF.
Kiah is in year 12 and works part-time at Adventure World as a lifeguard, “I absolutely love my job and the people I work with. It’s so much fun. I also run my own business making dog accessories (when I’m not sick or working or studying) and I love to draw”
Kiah has a Border Collie x Koolie, named Splash, who she is training to be an assistance dog. Kiah loves to make accessories for Splash to wear!
In April Kiah started on Trikafta, “I was very nervous and excited about starting Trikafta. I had been waiting for it for so long that I had begun to think that I was never going to be able to take it.”
Within a few hours my cough changed and I could feel things shifting in my lungs. By the 2nd day, I was able to take a deep breath for the first time ever that I can remember.
I was asked to do lung function on day 5 and when I did it, I thought that my home spiro was broken. It showed a 30% increase in my FEV1. My lung function has never been that high ever. These results were confirmed to be accurate which absolutely blew me away.
Since then Kiah has also noticed lots of other changes. She can laugh without coughing, has less headaches, sleeps better and consequently has more energy.
Just being able to dream and plan for the future is a blessing and knowing that I can do these things without worrying so much about being unwell or becoming unwell is a wonderful experience in itself.
This is a summary of Kiah’s Journey with Trikafta. You can find the full article at CFWA
The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs of Cystic Fibrosis Community Care. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health.
