Resources for health professionals
Provided below are resources we frequently refer health professionals to. If you would like more information, please contact your state CF organisation and speak to the services team or social workers.
Health Professions Booklet 2021
This booklet provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions.
A thesis written by Dr. Judith Glazner, who has worked extensively with the CF community in Melbourne, Australia. Dr. Glazner provides an insightful observation in her 2017 thesis study about the sibling experience and CF.
Physiotherapy
Beam Cystic Fibrosis is a resource to help people with CF feel good through movement, education and wellbeing support. All the activities and information is targeted at people living with cystic fibrosis.
CFPhysio.com aims to provide continued professional development for physiotherapists working in cystic fibrosis care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource may empower individuals with CF to become involved and proactive in their healthcare journey.
Clinical Practice Guideline for Physiotherapy for Cystic Fibrosis in Australia and New Zealand
Physiotherapy for Cystic Fibrosis in Australia A Consensus Statement
The statement provides recommendations for the key areas of physiotherapy management for patients with CF, including airway clearance therapy, inhalation therapy, exercise, musculoskeletal management, care of the complex patient, management of the newly diagnosed patient, transition from paediatric to adult care, end-of-life care and infection control.
Social Work & Psychology
The Australian Clinical Practice Guidelines 2017
Guidelines for Social Work in Cystic Fibrosis. The specific areas of CF social work practice covered by this document include: 1. Diagnosis 2. Infancy and early childhood 3. Childhood 4. Adolescence 5. Transfer of care 6. Adulthood 7. Transplant 8. End of life care.
A health practicioners’ guide to writing reports, letters, forms and assessments for the NDIS.
Depression, Anxiety and Cystic Fibrosis
People with cystic fibrosis and parents who take care of children with CF are two to three times more likely to experience depression, anxiety or both, compared to people in the general population. These guidelines were published to help CF care teams provide effective care for people with CF and their families with depression, anxiety or both.
CarerHelp has resources to support people caring for someone approaching the end of their life.
