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Community Resources

Living with CF can be isolating. It makes connecting with community—by reading, listening, or watching—all the more important.  

We have compiled this list of resources that can help make that connection. We’ll update this list as we can, and we welcome your suggestions of podcasts, vlogs and blogs, books, articles, films, or songs to include.

Send your suggestions to [email protected]

CF Podcasts 

This selection of podcasts covers a range of topics from both an Australian and international perspective. Do you have a suggestion for a podcast to add to this list? Contact us at [email protected]

  

CF Books 

From children’s books to memoirs, this selection of books features a range of different perspectives and voices.  Do you have a suggestion for a book to add to this list? Contact us at [email protected] 

 

  • The Mystery of the Sixty-Five Roses by Sandi Bowie: “When Darcy tells Jeremy that she hasn’t been to school all week because she has sixty-five roses, Jeremy is determined to find the roses for himself and see if he can get extra time off school. The Mystery of the Sixty-Five Roses is a picture book that helps children to learn about Cystic Fibrosis.” You can buy a copy of The Mystery of the Sixty-Five Rose from Cystic Fibrosis Western Australia.  
  • Liam, Strong as a Tree by Meghan Behse and Liam Wilson. Illustrated by Leesa Ervin: “Liam couldn’t be happier. He’s off to kindergarten, where he’s going to make a million new friends and learn a billion new things! Mom is worried about Liam going to school, but Liam knows he’ll be fine. He has his oxygen mask and his medication for lunch and snack time. Plus, he knows he’s strong as a tree. Inspired by a real boy and his first year of school while battling cystic fibrosis, read how Liam’s young friends, with compassion and support, remind Liam of his own strength during the isolating time of illness.” 
  • Growing Up Disabled in Australia, edited by Carly Findlay: “One in five Australians has a disability. Yet disabled people are still underrepresented in the media and in literature. In Growing Up Disabled in Australia – compiled by writer and appearance activist Carly Findlay OAM – more than forty writers with a disability or chronic illness share their stories, in their own words.”  
  • Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever by Bijal P. Trivedi: “From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the autopsy room of a hospital basement, and from the CF gene’s celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it.” 
  • Coughing It All Up: Chronicles of a remarkable life despite cystic fibrosis by Luke Peters: “Born in 1972, Luke Peters was diagnosed with cystic fibrosis. His parents were told it was likely that he would spend much of his childhood in hospital and would be lucky to reach his teenage years. Almost 50 years later, Luke is still fending off the impacts of CF with one hand whilst grabbing life and all that it has to offer with the other. With a steadfast resolve to fulfil his ambitions and a determination not to let cystic fibrosis define him, Luke has filled his life with achievements that few would have predicted possible at his birth.” 
  • Life happens for you: Backpacking the world with Cystic Fibrosis by Denise Yahrling: “A young woman on a journey to her inner self: Although Denise suffers from Cystic Fibrosis, she refuses to let this chronic illness bring her down. On the contrary, she insists on living life to the fullest. In her early twenties she discovers her passion for travelling, shoulders her backpack and sets off to discover the world. Many trips will follow. And these journeys, the people who cross her path and her experiences will change Denise forever.” 

CF Articles and Stories

From the origins of CF to the challenges of transplant, this selection of articles covers a range of different experiences and topics from an Australian and international perspective. Do you have a suggestion for an article to add to this list? Contact us at [email protected]