I think the positives of being in the adult system are that I can text the team and they will call me with alterations to my medications, which means I don’t have to go in for all health-related issues. I feel like you make more decisions over your own health because you know what works for you and what doesn’t. You can still keep in touch with the team at the children’s hospitals, so you know they are still there, but over time, you realise the staff in your adult clinic are there for you and they really do want to help.
Some of the negatives of being in the adult system include that the environment in adult hospitals is different. The children’s hospitals have bright colours and feel uplifting, whereas the adult ones are grey, beige and green. The furniture is all bolted to the walls and floors because people steal things. That’s not great.
I don’t understand why they don’t keep the brightness in the adult wards. It would make you feel happier about being there and could reduce admission times, as it impacts your mental health. You wouldn’t feel so stuck.
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